Resources
On the podcast we discuss several resources which helped us as parents of disabled children, you can find more information and links to these resources below.
There She Goes - BBC or shown on Britbox, There She Goes is a comedy drama that shines a light on the day-to-day life of a family looking after their severely learning disabled girl, Rosie.
Far from the Tree: Parents, Children and the Search for Identity - Andrew Solomon tells the stories of parents who not only learn to deal with their exceptional children but also find profound meaning in doing so.
Not What I Expected: Help and Hope for Parents of Atypical Children - Rita Eichenstein PhD, pediatric neuropsychologist presents strategies to help parents of special-needs children navigate the emotional challenges they face.
Hypotonia UK Facebook Group - a very supportive private facebook group for parents of children with diagnosed Hypotonia usually a symptom of another condition. Based in the UK
Sinead Burke’s Book – Break the Mould - a book for children to grow comfortable in their own skin, to understand the power in being different
https://www.sarisolden.com/publications - A Radical Guide for Women with ADHD: Embrace Neurodiversity, Live Boldly, and Break Through Barriers - Sari Solden
How to raise a happy autistic child, by Jessie Hewitson - The secret to… raising a happy autistic child | Parents and parenting | The Guardian
ADDitude magazine ADDitude - ADD & ADHD Symptom Tests, Signs, Treatment, Support (additudemag.com)
Support for domestic abuse:
Womans Aid
Telephone: 0808 200 0247 (24hours)
Email: helpline@womensaid.org.uk (response within 3 working days phone for urgent enquiries)
National Domestic Violence Helpline
Website: www.nationaldomesticviolencehelpline.org.uk
Telephone: 0808 200 0247 (24hours)
Email: info@refuge.org.uk
Website: www.refuge.org.uk
Stalking Helpline
Mental Health Support
Where to get urgent help for mental health - NHS (www.nhs.uk)
Useful contacts - helping someone who feels suicidal - Mind
Social vs. medical model of disability:
Social model of disability | Disability charity Scope UK
SWAN UK - for those with undiagnosed genetic conditions
Home | SWAN UK (undiagnosed.org.uk)
Helpful Funding:
Newlife the Charity - Changing the lives of disabled children (newlifecharity.co.uk)
Other Resources
Our podcast is focussed on the experience of us as parents of disabled children and how we navigate our world, we don’t attempt to educate our listeners on our children’s conditions. However, we would like to encourage self motivated education and if you would like to find out more about the conditions mentioned in our episodes, please find links below:
What is autism? - NHS (www.nhs.uk)
What Is Global Development Delay? Find Out More | Mencap